Re: CAT Scans - Millie-To Ginny
From: Colette (anonymous@medispecialty.com)
Mon Jun 11 18:11:54 2001
Dear Ginny
Wow i'v been to the ER several times had x-rays catscans ectra.. they
found nothing basicly told me i needed more healing time from my surgery
in dec.2000 I had a TAH now i'm going onto 6mos how much more healing
time do i need? And why don't these dr's just listen to us instead of
thinking were crazy? God bless ginny and thank you for the info at least
i know now that i'm not crazy!
Big hugs to you!!!
Love colette
>
>Dear Millie;
>
>Just want to tell you this on the board as well as via personal e-mail,
>in case anyone else has the same concerns:
>
>I had 4 solid days of in patient CT scans, X-rays, Barium studies,
>contrast studies and more poking and prodding, ultra sounds and even a
>psych. evaluation than you can shake a stick at. ALL WERE NORMAL.
>(including the Psych. consult!)
>As you know, my daughter is an OB/GYN surgeon and she scrubbed in on the
>laparotomy that was finally done, after all tests were negative and I
>was writhing in pain.
>Even the surgeon who agreed to "have a look" believed he would find
>minimal adhesions and nothing else.
>
>I had 8 hrs of intense surgery. The comment made by all 3 attending
>surgeons was :My God, this is the most horrific bellyful of adhesions I
>have seen in all my years. Every organ is displaced by several
>milimeters. Her bladder is embedded in the transcending colon.
>blahblahblah. NO WONDER SHE HURTS!"
>
>There isn't a non invasive study in the world that will show adhesions
>and the havoc they create inside us. Your colonoscopies and scans are
>normal for cancerous lesions and tumors, but that doesn't negate the
>fact that you have pain and that you have adhesions causing that pain.
>
>As I said to you before, it's a tough and tricky descision to have to
>make regarding more surgery, and weighing your pain versus the chances
>of developing more adhesions is something only you can do.
>That surgery was 6 yrs ago. Today I have more pain than I did back
>then, but I am glad I had the operation. At least it made me feel like
>I was NOT CRAZY!
>
>Please don't think that clean scans and x-rays mean that you don't have
>real pain. It simply means you don't have anything that can be
>visualized on a screen.
>
>Love to you
>
>ginny
>
>At Mon, 11 Jun 2001, Millie wrote:
>>
>>Dear Rose,
>>The report said something like... "scope to cecum.. poor prep esp. of cecum
>>& rt. colon. Rest of prep fairly good. no lesions visualized. Small
>>internal hemorrhoid."
>>Under discharge plans, "Bowel regimen. Repeat test 5 years.
>>I don't know what to do.
>>M.
>>
>>>>>----- Original Message -----
>>From: "Rose Lunn" <rose.lunn@eds.com>
>>To: "Multiple recipients of list ADHESIONS"
>><adhesions@mail.medispecialty.com>
>>Sent: Monday, June 11, 2001 3:32 PM
>>Subject: Re: CAT Scans - Millie
>>
>>> Millie,
>>>
>>> Is that all she said about your colonoscopy? (She said she had no
>>> trouble getting scope all the way through.) No mention of what she
>>> found? Can you request a copy of her report? The doctor that did mine
>>> wasn't the world's best communicator, but he did send me a copy of his
>>> report when I asked for it.
>>>
>>> I know it is hard to be proactive when you hurt and are soooo tired. Is
>>> there someone who can intervene for you?
>>>
>>> Love, hugs and strength to you,
>>>
>>> kcmo rose
>>>