Three weeks ago I had surgery not knowing what to expect. I think I posted the outcome and it was confusing to some as it was to me. I have a bit more info and thought I would share it.
Last year I was diagnosed with adhesions and endo during a lap. Continued to have pain for over a year dispite Lupron and being thrown all over to different doc's.
During this lap my new gyn found that my left broad ligament (uterosacral ligament) was significantly shorter than the right. On the pictures the right looked to be 3-4 inches and the left only about 1 inch, almost not even there! There was endo on this ligament and behind. The dr. thinks this is what caused it to shrink up causing adhesions on the ligament as well. He says he has never seen anything like it. What he did to try to alleviate the problem is he cut right through the ligament and the nerve that runs through it, thus freeing it. He says that this in fact is what could have been causing my back, groin, leg, labia, abdomen and hip pain for so long. Because the uterus was not being allowing to "float freely". Periods were very painful too.
For the first week or so all I had was the surgical pain. I felt pretty good. Every once and a while I feel this exact pain again. I am very scared to do any activity because if I do start to hurt again, I will not be able to say I feel better after my surgery. I so want to say I feel better, cut and dry.
I will see him in about 6 more weeks to follow up and see what is going on, how I feel etc. Apparently it might take a little while to feel the full effects? Don't know why if he cut through the ligament and the nerve. From what I can gather this procedure is called the LUNA procedere, laparoscopin uterosacral nerve ablation. Has anyone had it or heard of it??
Like I said, the doctor has never seen anything like this "shrunken ligament". Says if this works he is going to write it up as a report...gee thanks.
Any info or input would be greatly appreciated. I know some and not all of you have endo as well. I have also been to the endo forum and haven't gotten any responses there.
Sorry this is so long....
Take care all, Karen H.