Re: CHERYL COLE

From: Cheryl Cole (ccryder752@aol.com)
Sat May 5 09:09:39 2001


At Fri, 4 May 2001, jackie burgess wrote: >
>Hi Cheryl,
>thought i would write to let u know that I have tried a tens machine,
>unfortunately it made the pains worse, so I stopped using it.
>I am now on Neurontin also known as Gabapentin, I am on 300mg tablets = 2X
>three times daily which makes the dosage 1800mg per day, PERSONALLY, I am
>finding that they are affecting my speech very badly, I know what I want to
>say but the words either wont come out or they are all the wrong way round,
>much worse than a stutter or stammer, and also I am finding that this dosage
>is not taking all the pain away, I have to see my pain consultant on the
>15th may, and she may increase dose or wean me off them, I just dont know. I
>am very embarrassed talking if I go out, My husband has explained to people
>why my speech is affected in this way. But I got really upset yesterday, I
>went to see my Dad, first time since last July, as he hasnt got time for me
>and all he could do was criticise my speech, I tried to explain why it was
>like it was, but I just hurt so much inside at what he had said, I thought
>that if my own dad was doing this to me how many other people, if i go out
>are going to do this to me, so it hasnt done my self esteem anygood, my
>immediate family, and inlaws are really understanding, and if they know what
>the word is or the sentence that I am trying to say then they will finish it
>off for me. I am going to tell my pain consultant this, because I feel I
>have enough to cope with the adhesion problem let alone a speaking problem.
>I have been told that these drugs are predominantly used for people with
>epilepsy, but they seem to have a good effect with managing pain, well not
>yet for me.But this is just MY personal experience each person as you know
>there body accepts or rejects medication all differently. I am aso on
>Arithrotec,for pain, Amitryptiline, for pain, Morphine for pain, and the
>only one that touches the pain is the morphine. so I dont know whats going
>to happen.
>
>If I can help in any other ???? dont hesitate to write
>
>regards
>Jackie Burgess
>england

--
Dear Jackie,I am so sorry to hear the med is doing this to you.  I know you have
been thru so much and this must only add to the frustration.  I am just getting
started on 100mg tabs 3 times per day.  Dr. did say he will be increasing dosage
slowly till it works.  I will be aware of any of these side effects.  Thank you
so very much for the info.  I will keep you in my prayers.

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