Dear Ginny,
I am so happy that you found this web site and I hope that you don't do
anything drastic before reading some back issues posted here. I had my
bowels covered with adhesions and if I did any exercise at all I would
have to be immobile the next day. I lived a nightmare! Not only did I
have the adhesions but I had an entrapped nerve at the top of my vaginal
wall that required 10 Methadone and 10 Neurontin per day to quiet. I
went to Germany to see Dr. Korell in March of 2000 and he cured me of
the adhesions and the nerve improved but did not go away. I thought
that I was going to have to accept the pain until a pain doctor, here in
California, injected it with Prednisone, which wore off leaving the pain
at the level before Germany. So I went back 4 weeks ago. Dr. Korell
was thrilled to find that only 5% of my adhesions had grown back from
last year and I was thrilled when he managed to get the nerve out. I am
still recouperating but am starting to get more strengh and can't wait
to start exercising like crazy!! I fully recommend a trip to Germany. It
is affordable too. Write me if you want more info. My heart goes out
to you. With love, Joanne
At Tue, 01 May 2001, GINNY wrote:
> >I have been searching the net for a year looking for pain support sites. >I found several but it seems virtually everyone has pain related to back >conditions or neuropathies. Until just now, accidentally clicking a >hyper-link in an unrelated message I found a site that specializes in my >problem. > >I am 45 and I have been through 13 major pelvic operations since 1980. >The original one was an appendectomy that was nopt necessary, post op >findings. I must have developed mild adhesions which caused moderate >discomfort, but back in the 80's it was easier to get insurance >companies to pay for major surgery than to foot the bill for a barrage >of diagnostic tests, so every time I had abdominal pain I was admitted >to the hospital and opened up from naval to pubic bone. I don't have to >tell you that this created problems beyond the scope of understanding. I >then developed a bowel obstruction from adhesive bands and had another >operation. Finally, I went through an operation at a major university >hospital performed by a surgeon that specializes in releasing adhesions. >He thought it would be a 3 hour process. 10 hours later I was told that >my abdominal cavity organs are displaced and that my bladder is so >firmly embedded in my bowel that he could only free up 30% of the >adhesions. He removed a portion of bowel that was pre necrotic and used >a Baker tube to try and clear some of the banding around the colon but >the results were limited to relief for less than 3 months. I now have >been diagnosed with "Advanced Pelvic Adhesive disease with multiple >neuropathies" (the 4 lb. mass of tissue and webbing is resting on the >nerves into my thighs and down my legs) > >I was also told that further surgery for adhesion control only would be >life threatening. My options are as follows: > >1. Exoneration surgery....remove bowel, bladder and colon and replace >with bags and tubes and spend the rest of my life like this > >2. Pain Management >I am in a PM program now for 6 years, on MS Contin and while it seems to >control the bulk of the pain, I am uncomfortable about 60% of my day. If >anyone can tell me of anything that may have come along in the way of >treating my stage of adhesions in the last 8 years, please, please tell >me. I cannot believe I may be on narcotics for the rest of my life, or >that scooping me out like a Jack-O-Lantern is the only alternatives I >have. > >Is there any place or any surgeon who has devised a successful >treatment? I cannot believe they are actually subjecting healthy people >to chemo for adhesions, but this is one thing that was mentioned to me. >Is it true? > >I would give anything for anyone's feedback, and if you have no good >news on the surgical side, your support and sharing of ideas with me >would be forever cherished. > >I need to say one last thing....this is a God sent gift. I cannot >believe there are actually other people with the same or similar >conditions as mine and I am so lonely for someone to talk to, who can >fully understand what this pain feels like. > >Thanks in advance to anyone who cares to answer. > >-- >Ginny > >-- >Ginny H. >