Re: for GINNY H !!!

From: jackie burgess (jackie@k9paws.fsnet.co.uk)
Tue May 1 12:43:19 2001


Hi Ginny, well, you have certainly been through a very rough time,BUT, I know things look bleak at the moment ,as I am in the same situation as you are. You talk about removal of bowel and ending up with 'bags' BUT PLEASE READ ON !! then it might help you in some way or another, I too cannot find anyone willing to perform surgery on me. HERE GOES:-

My Story I had an operation to remove ovaries in july 95 unfortuanately the surgeon punctured my bowel and bladder, they didnt diagnose peritonitis until 3 days later, of course i was extremely ill. ended up with a colostomy and a leg bag for urine.2 yrs later still in chronic pain adhesions were diagnosed one surgeon did a laparotomy for me to be told they were so extensive, so he couldnt do anything and closed me back up.i rapidly deteriorated and went from 10 stone down to 7 ½ stone in six months dr said if they didnt operate on me soon i wouldnt see feb. this was in dec 98. i underwent adheysoliysis and had 18mnts realtively pain manageable after being on heavy doses of morphine for months.july 2000 started going down hill again pain back with real avengence am now back on morphine and am in bed for upto 22hrs a day can hardly walk, might be able to eat i meal a week if im lucky otherwise anymore than that and am vomiting severly through extreme pain. even bring up fluids but surgeon has said unless theres a clinical blockage he wont operate. how am i supposed to know if i have clinical blockage because all the symptoms they describe i suffer from too.It is now april 2001 and I am in the same state again on doses of morphine and cannot hardly walk, have been in bed for upto 2o hours hours daily cannot eat anything.I have lost 5 kilos in one month, I have just spent 3 days in hospital, for severe constipation, due to all the medication, can't win, can I?.The consultant and pain specialist are now trying to sort out medication, but have told me I will need medication for the rest of my life. If it were not for my marvellous husband's support and love i dont think i could, or wanted to have come this far.Since the ARD web site and notice board it has lifted my spirits a bit, and my husband now understands alot more about my condition. Having two children to care for is practically impossible. My sister feeds them every night for me or my husband does. I feel somewhat redundant and cant see a way out of this illness thank you for being there for me and all the other suffers. I am now registered disabled, after having 17 OPERATIONS. If you look on the adhesion site, then you will find some poetry that I have written, this is the only way that I can vent my emotions, as I cant talk to my husband about how I feel, because he is living this ARD nightmare aswell. feel free to email me privately if u wish 2 my email is jackie@k9paws,fsnet.co.uk hope to speak, i didnt get ur email address. 2 u soon take care. regards Jackie B SURREY ENGLAND


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