Re: Visual Aid - Lets explain Adhesions!

From: Sally Grigg (lostcst@mcn.org)
Thu Apr 5 14:40:47 2001


Hi, it sounds good, except I tried the concept out on total strangers (guests here at the Inn) and everybody got kind of squeamish and didn't really want to talk about my intestines, bladder, blood and guts, etc. Remember that old song (?) The back bone connected to the etc. Maybe we could do something like that. The bladder connected to the colon connected to the vagina connected to the liver,etc. I don't know. We need to do something, but unless you have the problem, its hard to make people listen to the particulars. The human interest part, where people used to climb their tree and bottle feed baby birds, but can't do it now might get people's attention more . They don't necessarily need to know that my upper colon is trying pull my bladder higher into my abdominal cavity and my organs are at war with each other. May the stronger one win. Sorry to be so flippant. And yes, its time for another laproscopic agony, but I'm scared .Love, Sally

Wally wrote:

> Hi everyone,
>
> There is a group of people working on an idea for a press kit, to help
> let the world know about adhesions. This press kit will contain a
> number of things, one of them being a visual aid. We want it to attract
> attention, to explain what adhesions do and we need it to be easy, quick
> to assemble and most importantly cheap!
>
> Mary Wade emailed me with the seed of an idea.....she said I have rubber
> bands rattling around in my head, but I can't seem to finish the
> thought......
>
> I have emailed some friends in Public relations and asked for their
> opinion of our idea.....here is a section of my email to one contact:
> ________________________________________________
>
> ________________________________________________
> "As you know Rach, I have been unwell since my surgery last year and I
> am suffering from "adhesions" which is scar tissue that grows inside our
> bodies after surgery for example. These adhesions "glue" things
> together. The adhesions have stuck my bowel to my abdominal wall,
> wrapped my bladder and ovaries & stuck them to other parts of my
> abdominal cavity....ouch!
>
> I am working with a group of adhesions sufferers on a press kit, because
> adhesions is a very serious disease, and little is known about them, and
> the damage they can do. Many people under go surgery after surgery,
> trying to resolve the pain incurred by these adhesions. One woman I am
> in contact with has had over thirty surgeries!
>
> The second idea is to have say 3 sponge balls labelled as different
> organs such as "Bowel", "Ovaries" and "Bladder". These three balls
> would also then be bound with several elastic bands, to represent the
> "ball of adhesions and organs" surgeons often describe after surgery on
> an adhesions patient."
> ________________________________________________
>
> ________________________________________________
> Ok....so what do you think? Any suggestions? Any different ideas? All
> comments will be greatly appreciated!
>
> Looking forward to all of your comments,
> Cheers & hugs,
> Jo
>
> --
> You will never never know.......if you don't give it a go :)
>


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