Re: New member/bladder adhesions?????

From: rikam (rikam@uswest.net)
Thu Mar 15 12:49:51 2001


Yep, been there too. No fun. 18cm hematoma, infected, septicemia, iv fluids for ever, transfusions, etc. deathly ill etc. etc. I am so glad you survived your ordeal. Bladder probs here as well. Excruciating pain. Where did your blood come from...the hematoma? I mean why did you end up with a heamatoma.

>----- Original Message -----
From: "Rosie" <kandleglo@msn.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Thursday, March 15, 2001 11:01 AM Subject: New member/bladder adhesions?????

> Hi! My name is Rosie & I just turned 50 in January (that still doesn't
sound > possible!!!! OUCH!). I had an Abdominal Hysterectomy a little over a year
> ago - October 15, 1999 (completely unnecessary in my opinion) and then
> another surgery November 29 of the same year to insert a drain due to a
> Staph infection in a Hematoma caused by the Hyst. This past year has been
a > nightmare. I never really had many problems at all before the surgery,
> except was beginning to have excessive bleeding during my periods. My GYN
> had just retired so I ended up in the ER one night due to heavy bleeding.
> They referred me to a GYN who was accepting new patients. On my first
visit > he recommended a Hysterectomy (no other options mentioned). I was feeling
> down at the time and figured he knew best, so got up like a dumb cow and
> followed him from the room and scheduled the surgery for the very next
week. > My life has gone downhill ever since. I had a horrible Staph infection and
> was on IV & oral antibiotics for ages which almost destroyed my intestines
& > caused bloody diahrea. When they did the 2nd surgery they left the wound
> open to heal from the inside out & I had to have home health aides come
> every day for 2 weeks to help pack the incision. It didn't heal right and
> left a deep cleft along the incision line (it was a bikini cut) and it has
> developed a thick ridge of scar tissue beneath it. I've had numbness in
that > area, tingling, and pain - even after a year. The problem that is
bothering > me the most now is that about 4 months ago I began to have discomfort -
> pressure & a sqeezing type pain in the bladder area - around where the
> incision & scar tissue is. I believed it was probably the scar tissue
> pressing on my bladder. I went to a plastic surgeon and he said he
wouldn't > touch me till I saw a Urologist. The Urologist did a Cystoscopy and found
> nothing out of the normal, but said it was probably adhesions from my
Hyst. > I went to a new GYN and he referred me to the Mayo Clinic. I don't want to
> go as if it's adhesions I've been told that further surgery will just form
> even MORE adhesions and besides the doctor said it was risky as the
bladder > could be punctured, if indeed, that is what was causing the pain. I guess
if > it's not life threatening I could learn to live with the pain, but I was
> hoping with time I would feel better, not worse. This is really
debilitating > & frightening. Has anyone else had anything similar to what I am
> describing???? I've been told that adhesions on the Bladder can't cause
> damage - just discomfort (if that's what it even is). The doctor said it
> could also be an adhesion on my bowel that is pushing against the bladder.
> Can't they do MRIs to see if that's what it is?? I asked, but they said
they > weren't sensitive enough to pick them up - I would think they would be????
> My sister-in-law had a Hysterectomy the week after I had mine and about 3
> months ago had to have emergency surgery to take out a foot of her
> intestines due to adhesions. She had felt fine and had made a remarkable
> recovery from her Hysterectomy until about 3 days before her emergency
> surgery when she felt like she had gotten food poisoning. The doctors have
> already told her the adhesions will come back - it's just a matter of
time - > how comforting!!! Anyway, thanks for listening to my story and I would
> appreciate any comments and would love to hear of your experiences too.
> Rosie
>


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