I spent last night, and I mean all night reading about everyone on the
quilt. I posted my own information and read on. For the first time in
so many years I don't feel alone. I cried through most of them as I
feel the same exact pain and frustration as all of you do. Being a
medical student I have attempted to research my condition but the
medical community is so reluctant to "seriously" confront this issue. I
am so glad to know that there are other "normal" people who truly suffer
daily as I do. I am scared to death that this is a life sentance for me
and any relief I get from surgery is lasting a shorter and shorter time.
I thought I did well if I made it a year, then it was 9 months, then 4
and now 8 weeks post-op. I am truly scared--I know too much about
medicine and the risks of every invasive procedure and all the meds. I
am hoping at least this way to get support and provide it too will
help--I am desperate for the help. My prayers and sincere best thoughts
and wishes to all of you, hang in there, tomorrow won't neccesarrily be
better but we are not alone.