Re: Discovering the Fellowship

From: Mary Wade (
Thu Feb 1 20:51:50 2001

Neighbor from Kansas here. I was told after my hysterectomy in 1986 that my endo troubles were over. I was told after two laparoscopic surgeries in 1999 that my endometriosis was gone. Then, six weeks ago, I had another surgery with Drs. Reich and Redan in PA. Guess what was found? Endometriosis. Endo causes adhesions. Endo entangled in adhesions doesn't look like endo. Path studies are needed to tell for sure. I was SURE that my endo was gone. It wasn't. I'm better after surgery and keeping my figures crossed. Mary

At 06:28 PM 2/1/01 -0600, you wrote: >Dear Members of this Board
>I discovered this site just this week in a desperate attempt to find out
>SOMETHING about adhesions. I figured I could not be the only one
>suffering. Boy, was I right. I have spent the day reading the postings
>to this board and am now both relieved not to be alone and still
>frustrated that there is no "cure". My story is similar to everyone I
>read - surgeries, endometriosis, more surgeries for complications with
>the final surgery climaxing with the acknowledgement that adhesions were
>now my final problem (no longer endometrosis since we did manage to get
>rid of that with a full hysterectomy). I have been fortunate in that my
>pain has been intermitten for the past two years and easy to overlooked
>by myself. It has only been in the last three months that it has become
>more and more constant and I had started on the same pilgrimage that
>many of you have endured for years. I.e., the doctors who run dozens of
>tests, everything is normal and we are left to "assume" the culprit is
>adhesions. The final act being that all the doctors get a "deer in
>headlights" look and mumble as they turn away.
>Although I recognize that there may be no "cure" I do wish to pursue
>alternative methods to at least relieve the pain and also find a
>specialist to partner with should complications develop. Which brings
>me to my question, "Can anyone tell me how to go about finding a
>specialist in my area?" I live in the St. Louis region and would like
>to find someone who knows more than the run-of-the-mill. Are there
>certain questions I need to focus on? Is there a magic word that will
>help me seperate the wheat from the shaft?
>I apologize for my long winded posting and understand if no one has an
>answer. Either way, I want to thank everyone for the sharing and
>comfort offered to strangers. May Peace find all of us in some way.
>Robin M.

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