Re: Adhesion surgery/colostomy

From: Judy H (Judyh36@ivillage.com)
Tue Jan 16 10:47:57 2001


At Tue, 16 Jan 2001, toni welsh wrote: >
>At Tue, 9 Jan 2001, Judy H wrote:
>>
>>At Mon, 8 Jan 2001, toni welsh wrote:
>>>
>>>At Tue, 2 Jan 2001, anonymous wrote:
>>>>
>>>>Hi, is there anybody out there that has had a colostomy due to
>>>>adhesions? I had surgery in June 2000, ended up with colostomy. I go
>>>>back to the Dr. this month to talk about reversal, but I'm really
>>>>scared I may have more adhesions.
>>>>Can anybody relate?
>>>> Thanks Judy H
>>
>>>Judy,
>>>That is my fear as far as anymore surgery, I have not been here alot, I
>>>have not been feeling any better, and I am considering seeing a general
>>>surgeon soon. I have been in alot of pain, and oxycontin has stopped
>>>helping me. I am sick and tired of living on laxatives, now I do not
>>>have bowel movements without 4 to 6 senekot, and a glass of prune juice,
>>>to get the stool soft enough to get it to move. Bowel movements have
>>>become extremely painful, and I have afear of colostomy, I have a sister
>>>who had a permanent one now, she has had it for almost 4 yeras, but she
>>>has crohns disease! What was the reason you had to have one? I have been
>>>putting up with this pain for over 3 years now, and it is getting to me
>>>BAD!
>>>
>>>Toni
>>
>>Hi Toni,
>>I went into surgery for removal of my left ovary, the x-rays showed a
>>mass on my left side and pelvic area, my GYN thought it was a cyst and
>>possible adhesions, I've had 4 surgeries in the past, one was colon
>>resection in 97,for perferated bowel, due to diverticulitis, I had 18
>>in.of colon removed. This time I was having so much trouble getting my
>>bowels to move ,I was bloated and in a lot of pain.When the surgeon
>>opened me up , he said I had ( leather like ) adhesions that was wrapped
>>around my colon on the right side and on the left, they couldn't even
>>get my ovary it was so tangled in the mess.The surgeon said in his 30
>>years of practice he had never seen them that bad. He removed 2 ft. of
>>colon, which leaves me with 18 in. of colon.I went through the test to
>>see if I had enough to get reattached and I do, so now I have to make a
>>decision to have it done. I'm doing quite well with the colostomy, I've
>>had no problems, and I'm feeling good.
>>Sounds like you've had a rough time of it, I think if I were you I'd go
>>see a surgeon and see what he has to say, make sure its a good one, one
>>that has done this surgery before ask lots of questions, my heart goes
>>out to you as I know how you must feel.What has your Dr. said about all
>>this? Write me back and let me know how your doing.
>>Sorry this is so long, I hope it's not confusing to you.
>>Judy H
>>
>>--
>>Judy H
>>
>I tried to post to you , Judy, on Sunday, I am feeling so low abotu all
>of this, the gyn found a general surgeon who would do my surgery, but it
>tool a number of them he talked to before any of them said they would
>touch me. I know they have told me without exactly knowing where the
>colon is, they could perferate it, and then I would lose some.
>
>I have been taking so many laxatives, and now I have to up the doses on
>them, and a few times I had so much pain I was in tears. The one night
>I should have went to ER, I had so much PRESSURE had built up on the
>left side, and I felt like a balloon ready to explode on that side, and
>it took hours to get the stool to move. I ended up hurting myself that
>night, but the bowels finally moved, and that was after 6 senekot, and
>that stuff is really starting to hurt so bad as far as cramping. I have
>not had a BM without a laxative for probably 3 times last year! Now I
>added a LARGE glass of prune juice in the morning, but I still have alot
>of trouble going, do not know where to turn!!!
>
>Toni

HI Toni,I'm so sorry you are feelin so bad, have you had a colonoscopy to see whats going on in there? I know it has to be terrible that surgeons won't talk to you about it, just plain old milk of magnesia helped me somewhat, but I don't think I was having as much trouble as you.If I didn't go some every day I would be hurting really bad.The surgeon said he didn't know hoe I was going at all that adhesions had left me with an opening the size of a pencil. Having a colostomy isn't that bad compared to the pain and the way your living now, are you afraid , this is what will happen. I hope you get some answers soon. I think this board is a little confusing, or maybe it's just me. Judy

--
Judy H

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