I'm glad my story helped in some way. I haven't tried the Zortix. I'm sure the names are totally different in different countries though. I haven't tried anything else for the bowel pain as both my surgeries were emergencies. With all my other surgeries I was just careful not to take too much Codeine, I took alot of morphene, pethedene all of that. I do remember the all those invasive tests showing absolutely nothing until they went in. Including the colonoscopies, the barium enema's the fifty odd bowel prep's I had to take, even though they knew I had an obstruction. The pain is excruitiating and I understand where you are. But you do need to get help and fast. Everyone knows, even without a medical mind, that the pain is not normal. My wonderful doctors have told me that I know my body better than anyone, and I don't stop until I get answers and satisfaction. The pain is always caused from something ! Remember that. Make them listen.
In the meantime I can only suggest that you keep strong by talking about it. (It helps to vent). Know that it is YOUR body and you have a right to find out why you feel pain. I know that you cannot eat much, but keep trying because even though you vomit, some of the nutrients are left in your body. Try some anti vomiting medicine? I always get angry because it keeps me from crying when I see the specialists, and pushes me to make them give me answers.
Take care babe Trace xo
>----- Original Message -----
From: "Janet Karam" <jkaram4@home.com>
To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
Sent: Friday, December 15, 2000 3:56 PM
> Hi Trace,
>
> Wow...that sounds like me right now! Thanks for sharing your story. My
> stomach is so bloated, I can imagine the skin stretching to the point it
> bursts! I have an appointment with a new G.I. Jan.9, and will ask about
the
> Colofac. I'm glad you've found something so helpful. What about this
Zortix
> gel I've heard mentioned, have you tried that? I would love to start
eating
> again, but right now, there is so little I can handle, not to mention the
> pain.
>
> I am keeping my chin up. It helps to get e-mails such as yours, to know
> there are others, and that there are answers.
>
> Take care,
>
> Janet
>> ----- Original Message -----
> From: "niko (awesome)" <nicko69@dingoblue.net.au>
> To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
> Sent: Thursday, December 14, 2000 7:15 PM
> Subject: Re: where to go, what to do
>
> > Hey Janet ;-)
> >
> > My Digestive problems ranged from incredible bloating, I looked like a
> > pregnant woman ready to burst, to not being able to hold down any food,
> the
> > specialist did find that I had a floppy bowel and stitched it up the
first
> > time. The second time they resected and took a huge piece out so that it
> > stopped twisting and totally blocking and of course found a mass of
> > adhesions around the twisting areas.
> >
> > After surgery I found that if I ate something it would give me diarrohea
> or
> > constipation. But I think the worst was the bowel pain. I found it
> extremely
> > hard to tell the difference between, Endo, Adhesion or Bowel Pain.
Tests,
> > tests, tests. Then my bowel specialist gave me the Colofac and it
settled
> my
> > bowel down enough to know that certain pain was caused from it. And when
I
> > started eating the right foods, it starting working properly. It is a
> > relaxant for the bowel.
> >
> > Someone wrote a message in here recently, about how alcohol helped the
> > bowel. I think that when I drank alcohol it relaxed myself, enough to
not
> > feel as much of the pain. You certainly shouldn't take alcohol with
> > medication, I am not advocating it. But the bowel does need to be
relaxed,
> > and that is what the Colofac does.
> >
> > I find that I can eat certain foods that I couldn't before now. But
still
> am
> > very careful. I don't eat very spicy foods as they make my bowel go
> stupid.
> > But a little bit of tomato and peas here and there, but never overdo it.
I
> > am mindful as I don't want that awful pain if I can help it.
> >
> > I guess the reality of having such major operations, made me realise the
> > importance of my diet. I was close to a colostomy bag, and the fear of
> that
> > is enough to ensure my diet is balanced with alot of fibre. The easy the
> > bowel movement, the less pain for me
> >
> > I hope this helps anways
> > Keep your chin up !!!
> > Trace.
> >
>> > ----- Original Message -----
> > From: "Janet Karam" <jkaram4@home.com>
> > To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
> > Sent: Friday, December 15, 2000 3:25 AM
> > Subject: Re: where to go, what to do
> >
> > > Thanks Trace,
> > >
> > > I appreciate your help. Never heard of Colofac, but it sounds like
it's
> > > worth looking into. There is so little I can eat right now.
> > >
> > > If it's not too personal, what type of digestive problems were you
> having
> > > before taking Colofac?
> > >
> > > Janet
>> > > ----- Original Message -----
> > > From: "niko (awesome)" <nicko69@dingoblue.net.au>
> > > To: "Multiple recipients of list ADHESIONS"
<adhesions@forum.obgyn.net>
> > > Sent: Wednesday, December 13, 2000 8:25 PM
> > > Subject: Re: where to go, what to do
> > >
> > > > Hey Janet ;-))
> > > >
> > > > I have IBS, and I take a wonderful tablet called "Colofac" .. I have
> IBS
> > > as
> > > > a result of two bowel operations and they found a heap of adhesions.
> > > > Adhesions on the bowel are an extremely hard thing to diagnose
without
> a
> > > > major operation. And that operation, is awful. The only time the
> doctors
> > > can
> > > > operate is in the event of an obstruction. After alot of hunting
> around
> > > for
> > > > my own bowel problems, Colofac is what I discovered. Great thing for
> me
> > > > anyway.
> > > >
> > > > I find it hard not to take alot of Codeine when I'm in pain, as it
> > upsets
> > > > the bowel, causes constipation and bloating. The bowel medication
> allows
> > > me
> > > > to eat anything now, and not get sick from the food. The bloating I
> > eased
> > > > with my 'ol hot water bottle.
> > > >
> > > > I had the rounds of doctors to find one to finally diagnose me with
> IBS,
> > > so
> > > > I guess my predicament is reversed to most of the sufferers here.
> > > >
> > > > Don't give up, there are alot of doctors out there that do care, and
> > will
> > > > help. I'm living proof that some medication can help. Have a cabinet
> > full
> > > of
> > > > ones that don't. But now have my main ones that do.
> > > >
> > > > Please keep your chin up, and avoid tomato, peas and spicy food.
That
> > > > information helps me alot.
> > > >
> > > > Hope I have helped even in the smallest amount,
> > > > Take care
> > > > Trace
> > > >
>> > > > ----- Original Message -----
> > > > From: "Janet" <jkaram4@home.com>
> > > > To: "Multiple recipients of list ADHESIONS"
> <adhesions@forum.obgyn.net>
> > > > Sent: Thursday, December 14, 2000 3:12 AM
> > > > Subject: where to go, what to do
> > > >
> > > > > Is there any point to seeing another G.I.? My last round of
testing
> > > > > resulted in yet another IBS diagnosis, and the advice to take two
> > > > > tablespoons of psyllium a day. It's not helping at all, and my
> belly
> > is
> > > > > so distended that a look pregnant! Every day is such a struggle,
> there
> > > > > is a list of about 10 foods that I can eat, and even then the food
> > > > > sometimes sits in my stomach for hours, often coming back up for a
> > > > > second tasting. Why won't doctors listen and try to hlp? Instead,
> the
> > > > > process of seeing a new doctor leads to such hopelessness and
> defeat.
> > > Is
> > > > > there really anything they can do? Or do I need to accept that for
> the
> > > > > rest of my life, I can be grateful to at least be able to eat
> steamed
> > > > > broccoli and carrots, mashed potatoes and cereal? I try to wake up
> > with
> > > > > hope every day. I experiment with different foods in an effort
for
> a
> > > > > more balanced diet, but I feel my head bruised from how many times
> > it's
> > > > > hit the wall. Thanks for letting me vent, I just don't know where
> to
> > > > > turn. Any cooments or suggestions would be greatly appreciated.
> > > > >
> > > > > --
> > > > > Janet
> > > > >
> > > > > to the unsubscribe form at
> > http://www.adhesions.org/forums/listcmds.htm
> > > > >
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> > >
> >
>