At Sun, 3 Dec 2000, Robin wrote:
> >Hi Jean >vicodin is a codine. Percocett will also be hard on the intestines as >all of the meds for pain. Try to get the Dr to give you mor of the >Oxycontin, I know it worked well for me. You might give the Duragesic >patch a try. You may have to find a new Dr that will give you the meds >you need to be pain free or at least fairly comfortable. My Dr is the >greatest. She doubled my meds the first time I went to her because she >understands pain & the meds that it takes to help people like us. She >also understands that these meds are addictive, but, since my surgery, >she will be gradually decreassing my meds so that I can get off of them >with the least amount of withdrawl symptoms. She has always told me >when the time comes to get off of the meds, she will take the time to do >what it takes. She wants to get me off slowly so that I dont have to go >to the hospital for detox. She plans on taking up to 3 months to take >me off slowly. She gave me a medication called metoclopramide in 10mg >tablets. These have helped alot to help my intestines work so I have >more movements in my bowels. You can talk to your dr about this med. >When I started taking it, my pain was reduced, just because my bowles >were working & wasnt so compacted. Just let me know if you have any >other questions. >Best wishes >Robin >Everyone who is dealing with adhesions have stories about medications, from someone who has been dealing with the pain/adhesions for a long time and a nurse let me first say that what ever works for you should be up to you and your doctor but be ASSERTIVE, a good doctor will listen to you. As Robin stated and I found to be true, if my bowels are working I do feel better but the pain medications will affect motility and if you bowels slow down from the pain meds you have to compensate with something else for the bowels. I know it is a vicious cycle but you have to work it out and remember QUALITY of life. Some of you may of tried it already but I am currently on NEURONTIN, it is not the drug of choice for everyone but if you haven't tried it ask your doctor. It is not a pain reliever but studies have shown it interrupts the signal of pain to your brain, or to some peoples brains. It has helped me but nothing is 100%, I like to feel in control and some meds just don't allow me to do that. Best of luck and remember be ASSERTIVE, it is your body and believe me you have rights. I am not down on all doctors but many DON'T LISTEN to women, I am sorry but we all know it is true, find a doctor that listens. I did (and it is a man).
Ann
>At Sat, 2 Dec 2000, Jean wrote: >> >>Hi Robin, >>I think I sent my last message to the wrong person and also made some >>errors on it! >>I am curious about pain meds. I have been on Oxycontin (Morphine pills) >>for severe pain and now doc says I must get off of them before I am >>addicted. I need something strong for pain however I have an ulcer & >>hiatal hernia so alot of meds(esp. with codeine)make me nausiated and I >>throw up and/or they cause such extreme constipation that I can't take >>them. I already take 12 Herb Lax every night to move my bowels. The >>said I can take 2 Darvocet every 4 hours but it doesn't work so I >>started taking the Morphine within hours, however my prescription will >>soon run out and they dont know what to give me. Is Percocet or Vicodin >>hard on the stomach or bowels? Is it also a narcotic like Oxycontin? I >>cannot function at all without pain meds or even on Darvocet! >>Jean >> >>At Mon, 31 Jul 2000, Robin wrote: >>> >>>Hi Suzanne,,, Welcome home!! I started off with Darvacet & percacet & >>>demeral,& others in that range, which none really helped my pain. Then >>>I discovered Vicodine. It is the only thing that seemed to help. Now I >>>am using the duragesic patch, Vicodine,10mg, (4-6aday),& Equagesic 200 >>>about 6 aday. It keeps my pain mainly under control, but I am never >>>pain free. I also use a tens unit, it helps too. I did use acupunture >>>once. He was a quack, but he did use a little ball (the size of a pen >>>head) on my ears that I could rub & it took away my pain for a few >>>seconds, They only stay on for 5 days, (I kept mine for 7 days) The only >>>thing was, I rubbed little blisters on my ears from rubbing them so >>>much. They were on a nerve or something, that when pressure was >>>applied, it blocked my abdominal pain. The reason I said he was a quack >>>was that he told me my eyes really werent green, they appeared green >>>because my bowles were backed up! My mom laughted when I told her that. >>>I was born with green eyes!! First you need to find a compassionate Dr >>>that will treat the pain. As far as the meds, you have to try them >>>until you find the right med or combination to control your pain. Try >>>what every you can to ease the pain. You never know what will help you, >>>every one is different. I have also had physical theraphy with deep >>>muscle massage. I know you will feel welcomed & you will find the >>>information to end your search. >>> >>>-- >>>Robin >>> >>>At Mon, 31 Jul 2000, suzanne wrote: >>>> >>>>Hi, I'm new to this forum. I am so glad I found you! I had hyst in 6/99 >>>>for endo, but endo returned. I then had lap surgery with an endo >>>>specialist in 2/00. I am endo pain free, but my adhesion pain has >>>>returned. I felt so good after each of the surgeries. But slowly my >>>>back stiffens up. I had severe endo with lots of adhesions. My back is >>>>stiff, like loss of motion with pain running down my left leg. I have >>>>seen many back/spine specialists and they could never find anything >>>>wrong with my back. Now, I know for sure, the pain I am feeling is from >>>>adhesions. My question to all of you is what can I do? Stretching seems >>>>to give me temporary relief. Has anyone tried yoga, how about deep >>>>massage, how about acupuncture? What are the best medications to take >>>>for adhesion pain? Also, does the pain get worse over time or what? If >>>>anyone can help me at all, give me some alternative treatments for the >>>>time-being, I do know that another surgery may be inevitable. Thank you >>>>very much. suzanne >>> >>>-- >>>Robin >>> >>-- >>Jean (from PA) >>