Re: 8mths post op from TAH/BSO, right end incisional pain???
From: gidge (gidge@eudoramail.com)
Thu Nov 16 09:56:52 2000
At Wed, 15 Nov 2000, suzanne wrote:
>
>Hi Gidge, I saw your post and it attracted my attention. I recently
>posted here regarding endo & adhesions. I am sorry to hear that after
>hyst you are still suffering. I too had TAH/BSO and my endo remained
>after that. I finally found relief with an endo specialist. But I
>still have one problematic adhesion area, where my ovary was originally
>attached to my bowel.
>
>I had bladder as well as bowel involvement after hyst (as well as many
>years before that). You did not mention if you are on hrt or not.
>Estrogen plays a major role in your urinary system also. I did not know
>that before hyst. I am on .1 vivelle patch, as well as testosterone for
>libido. I was originally on hrt after hyst, but went off for 6 months,
>but that did not make a difference. There are many studies now on endo
>developing it's own estrogen (aromatase) and does not need "our
>estrogen" from our ovaries to live off. You can almost say it has a
>life of it's own. I have finally leveled out regarding my hrt, but I
>can say it was a bumpy ride for a long time.
>
>Did you have your hyst with an endo specialist or by an ob/gyn? You can
>find a good description of symptoms of endo after hyst at
>http://www.scmc.org/endo.html
>
>I hope to hear from you as I have found great comfort in networking with
>other women regarding endo & adhesions. suzanne
>
>At Wed, 15 Nov 2000, gidge wrote:
>>
>>Hi I am 34yrs old and am 8mths post op from TAH/BSO for recurring
>>endo/ovarian cysts and undiagnosed bleeds. At time of hyst they found
>>another 6cm cyst on my right ovary and a 2cm cyst inside my left tube.
>>
>>About three months post op my right end of my incision started to hurt
>>and I was also having a deep "achy" crampy feeling that would spread
>>through to my lower back and down my legs.......with activity my pain
>>definitely gets worse, as it does with bowel movement,intercourse and an
>>internal exams.
>>
>>My gyn felt that it couldn't be recurring endo or adhesions and sent me
>>to the urologist three months ago, they did cytoscopy, hydrodistension
>>and have had some improvement in my bladder type symptoms but the
>>incisional/achy/crampy with activity pain still remains and my urologist
>>tells me that it is NOT bladder related.
>>
>>My question is, could this be adhesions? Recurring endo?? How do I get
>>my dr to consider this? I see the gyn that did my hyst on Dec. 11 (she
>>became very ill right after my hyst and I dealt with her partner since
>>this will be my first time seeing her again)and am just wondering how I
>>can make her take my daily pain seriously and what your opinion of it
>>is??? HELP??
THANKS for your replies to my posts!!! Suzanne, I am taking the birth
control pill (Brevicon .5/35) for hrt. due to an allergy to soy I am
unable to tolerate the patch, estrace, the gel etc and had to go to the
synthetics....which are working great (finally took about 4mths to work
up to this dosage) but I understand it could be feeding the endo....my
gyn's partner (mine was out sick from about 4wks post op till now) said
that the chances were almost "nil" that the endo would come back after
having a hyst and wouldn't even consider the possiblity???? I see the dr
that actually did the hyst on Dec. 11th and really want to be able to
speak frankly and get my point across re: adhesions and recurring endo
so ANY help you guys can give me would be great!!! Feel free also to
email me directly :)