Re: Completely AWFUL doc visit...I'm in a really dark place right now

From: Pam Markford (PJtweetyRn@aol.com)
Mon Nov 6 05:03:02 2000


At Mon, 6 Nov 2000, Susan_OR wrote: >
>Hi Everyone...
>
>I feel so alone and confused and desperate...I don't even know where to
>turn or what to do. I have decided that I am done with my doctor and I
>won't be going back. I don't think I'm going back to my gyn either...so
>now I get to go thru the fun experience of finding new docs. I went
>today and my doc prescribed Neurontin (has anyone tried this and what
>did you think?) and then told me how it would most likely take a long
>time to work, if it helped at all. So, of course, like anyone in pain
>would...I asked her to refill my pain meds while we were waiting for
>this to work. Can you already guess what the answer was? No...that's
>it...just no. I asked her what I was supposed to do then...just suffer?
>And she just looked at me like I had 3 heads. Dammit, I'm not a druggie
>and I'm not crazy....I'm in PAIN! She said I am just too young to be on
>pain meds all the time and that I have already been on them for 6 months
>so she couldn't refill it. Like I want to be on them?!? I'm still in
>pain and if they could offer me any other solution I would gladly stop
>taking the pain meds, but that is the ONLY thing that helps at all. She
>said, "honestly, I don't really think anything is going to significantly
>help you and Dr. Peterson (my gyn) concurs". Ok, so what are they
>doing? Humoring me? What the heck (not my first choice of words I should
>say) are they doing and why am I paying them? I'm done with them. I've
>only got 6 pain pills left so it's going to be getting real tough in the
>next day or so. If I am too young to be on pain meds then I am too
>young to just accept that I will be in this awful pain forever....I
>can't just accept that. I just can't.
>
>I have thought about Scranton, but honestly, I don't know how we'd swing
>the cost. Germany is a thought...but that just scares me to go so far
>away. So, I'm still trying to grasp onto life savers closer to home.
>I've been in contact with a Dr. Jerry Perez down in California in the
>Bay area. I'm hoping he might be able to help. At least with the
>lymphatic cyst, if not the adhesions. For right now, tomorrow...I've
>got to find a doctor who will treat this pain. It is getting to the
>point that I can't stand it one more second....let alone weeks. They
>are going to find me holed up in some dark, dingy hole playing with
>voodoo dolls in little white coats. Wouldn't that be fun?!? LOLLOL I'm
>completely joking, of course! Just had to get that out. I really am
>getting desperate. There just has to be a way to get relief.
>
>I'm praying for everyone who is off on their journey to wellness....
>
>Hugs,
>Susan

Dear Susan, No YOU ARE NOT A DRUGGIE!!! You have a right no matter how young or old to a life out of the pain. You are doing the right thing by finding a doctor who has knowledge and understanding on the pain that adhesions cause. Do not loose your faith. Keep talking to the IAS family we are all here to help each other.Sometimes we can only listen,but many,many other times we are filled with information that can help! Please try the web pages to help you find a pain management doctor then we can work on trying to get you to the doctors you need for the cyst and for the adhesion lysis. Take care and know that we all are praying for you for some kind of relief.

--
In Friendship, Pam Markford  PJtweetyRN@aol.com

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