Re: Helen chalmers, Still in pain

From: Linda Halford (libra1945@hotmail.com)
Sat Nov 4 20:23:02 2000


Dear Kath,

Did Dr. Reich and Dr. Redan do your "Adhesiolysis?" If so, when? I would like to have information from prior patients who had their surgery with these doctors over the past 20 years. I am looking for the statistics of successes and failures using Dr. Reich's procedure for removal of adhesions. I am so hopeful that I can get the necessary funds to have them perform "Adhesiolysis" on me.

Please respond to me personally. Thank you and may God Bless you.

Sincerely,

Linda in Jacksonville, FL email: Libra1945@hotmail.com

>From: "Kath Findlay" <klfindlay@yahoo.co.uk>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Helen chalmers, Still in pain
>Date: Sun, 15 Oct 2000 18:34:13 -0500
>
>Dear Helen,
>I have just read your letter which was re posted by Helen Dynda, and hope
>that you are indeed on the road to recovery. You say that you still have
>some pain, but don't attribute it to your adhesions. My question is how can
>you be sure? The reason I ask this question is that I have had several
>separations of my adhesions and after I had it done the first time I still
>had a decree of pain afterwards. I had an ovarian cyst removed at the same
>time and the doctors told me this was more likely to be causing the pain.
>They said that they had removed all the adhesions and I shouldn't feel any
>more pain from this. I would like to say at this point that the pain was
>not as bad as before, sometimes it depended on what I was doing. After
>three months, a trip to the psychiatrist and a bone scan, I managed to
>convince the doctors that I was still in pain so they eventually agreed to
>give me a laperotomy to see if perhaps I had another cyst. They were
>adamant that the Adhesions would not be the culprit. After the exploratory
>op they came with their tails between their legs and apologised to me .
>They told me that the whole of my left side was one large mass. my
>adhesions had returned.
>
>One week later I had my next op. It was new micro laser surgery. It took
>the pain away instantly but it returned within three months worse than
>ever. I was then told that a hysterectomy was the only option left to cure
>my adhesions. I had the hysterectomy and I was cured. I had 4 glorious
>years. I ran my Guest House. I did 9 learning modules that entailed 32
>exams. I was chairman of a marketing group. I was a workaholic, I loved
>life and the last thing on my mind was Adhesions.
>
>I woke up one morning and the dreaded pain was back. It took a year to
>convince them again, where the pain was coming from. After a visit to the
>psychiatrist again and yet another bone scan. Adhesions shouldn't give you
>this kind of pain, it must be something else. After the surgery the doctor
>visits my bed with a big smile on his face like he's just struck gold. You
>wont believe what we found. ( Yes I will, I have been trying to tell you
>for years.) We found that your Bowel was wrapped around your ovary and your
>bowel, bladder, appendix, well everything actually were all stuck together.
>I didn't Know whether to laugh or cry. I could not be mad at this man who
>had just taken all my pain away. Indeed once again I was cured instantly
>pain free and after a few weeks of the heeby geebies.( coming down from the
>pain medication) I was once again swinging from the chandeliers. I was
>definitely cured this time not an ounce of pain.
>
>I carried on with my Guest House. I started up an Au-pair agency, Built up
>and directed, another marketing group throughout the country and went to
>lots of meetings. Once again my life was worth living and yes I was
>complacent. Once again, Adhesions were the last thing on my mind. Did I
>speak too soon? where was this pain coming from. it wasn't even 3 years
>since the last op. I carried on suffering in silence for a while ( maybe it
>will eventually fade away as quick as it came. ) No! but surly this time
>I wont have to go for a bone scan. Oh yes you will ! I wont have to go
>and see a psychiatrist again. Surly not after the third time right, about
>where the pain was coming from before. Sorry Adhesions don't cause that
>type of pain in fact we're not sure they cause pain at all. ( It does, it
>does, Honest it does.) It must be in your head. We have an appointment for
>you to see a psychiatrist. We think woman sit at home with nothing to do
>but invent pain. ( are we crazy, or are they crazy.) ( please say them )
>Wrong! We are the crazy ones for putting up with all this.
>
>When I eventually convinced them that I was in agony, it was real pain, not
>in my head, and my bones were perfect, They couldn't find a surgeon willing
>to take the risk of operating. They eventually found a bladder surgeon who
>said he would do it. He advised me to have my remaining ovary removed and
>to cut down on the Hormone R Therapy, saying that it would aggravate my
>adhesions. Why had none of the Gynie Docs ever suggested this before.
>Although I didn't wish to go into premature menopause, I agreed. I will do
>anything, just take the pain away. By this time ( one year after going back
>to the doc, to tell him my pain was back ) I was just about climbing the
>walls. The night before my surgery, I slept like a log. Yes I was quite
>complacent. ( again, you say. I am afraid so. ) Tomorrow it will all be
>over. No more pain. Back to leading a normal life with my family again.
>
>I have, had this surgery several times before and each time the pain had
>gone instantly. Yes I had a little pain from the surgery, but that would go
>in a few weeks, it always did. Except this time it didn't. It was mild at
>first and I couldn't make up my mind if it was the surgery or the dreaded
>adhesions. Some days were better than others and after a month I had to
>come to terms with the reality of my life. It was here to stay, this time.
>
>I was told that I couldn't go on having operations for my adhesions. That
>each time I was doing more damage to my body. Its been 2 years since my
>last op, which means three years in pain. No more swinging from the
>chandeliers. I spend each day on the couch with my lap top, I write books
>and sometimes I paint. I am classed as severely disabled. I can only go out
>in a wheelchair. I have not only ruined my life but I have ruined my
>husbands life too. We had to sell our home and he has had to give up his
>career, to look after me. And the ironic thing is it probably could have
>been avoided if only I hadn't been so trusting and believed everything that
>the docs told me. If only I had asked more questions. If only I had taken
>charge of my own body.
>
>I am sorry that this is so long, I don't wish to bore you all, but if I can
>stop some of you from making the same mistakes as I have, then its worth
>it.
>
>Helen I don't know how long it is since you had your surgery, but I will
>pray that the pain you still have is from your wound and not your
>Adhesions.
>
>Best Wishes to you. Hope the pain goes away soon. Kate.
>


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