> -----Original Message-----
> From: taraifvopni@hotmail.com [SMTP:taraifvopni@hotmail.com]
> Sent: Sunday, October 29, 2000 12:42 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: My name is Tara and.........
>
> Hi my name is Tara. I'm 24 years old and been dealing with unbearable
> pains and uncompasionate doctors. After finding the right doctor and
> going through many examinations, treatments, ultrasounds and lapos they
> said I would be fine. I just went for my last lapo on Sept 15. they
> found that along with polycistic disorder I have endo. It has been a
> little over a month now and I still havent had my monthly cycle. Does
> anyone have any suggestions for the pain and more info. Thanks Tara
>
> At Wed, 23 Feb 2000, Tara S wrote:
> >
> >Hi, Tara. I only discovered this forum myself about 1 1/2 months ago. I
> know
> >how you feel - we all do - and I just want to let you know how supportive
> >and helpful everyone here is. I'm looking at another operation in the
> next 2
> >weeks (only my 4th, which around here is apparently not all that much,
> but
> >it's been more than enough for me!) for adhesions, rectocele, enterocele,
> >and a partial bowel obstruction. I know what you mean about how other
> people
> >react to your illness. All the doctors have told me for the past 4 1/2
> >years, "You're constipated - take laxatives!" Which can not be good for
> that
> >length of time! Then there's the doctor who, without bothering to even
> >examine me AT ALL told me, when I had an ectopic pregnancy, that I had
> bad
> >cramps, then doped me up and sent me home! I nearly died the next night!
> And
> >of course, my favorite, the female ob/gyn from some Middle Eastern
> country
> >who informed me that chronic abdominal/pelvic pain in women is often due
> to
> >having had multiple sexual partners and left it at that!
> >
> >Then there is your family, and your friends. They try - but it's hard for
> >them to understand. And you know they want you to just "Snap out of it!"
> -
> >sometimes they even say it and imply it can't be as bad as you say,
> >especially when the doctors don't seem to think you should feel that bad.
> >
> >As for getting married, my husband is a wonderful person who has stuck
> right
> >by me, does all the housework, takes care of our son, takes care of me,
> and
> >has been supportive in everything, including the times I've lost jobs
> >because of this, resulting in us nearly having the power shut off or even
> >losing our apartment or house. I will admit, we are separating sometime
> in
> >the future when this latest episode is over, but it has nothing to do
> with
> >him giving up on me or anything like that. We are still very close. Not
> only
> >is he my best friend, he always will be.
> >
> >I guess the point I'm trying to make here is, you have to take the risk
> of
> >losing people to find the one who will really be there for you. And don't
> >give up - those few people who do stay are the best things in the world
> to
> >help you keep your sanity.
> >
> >Take care - and come back often. It's a good place to vent when you need
> to.
> >
> >--
> >Tara S.
> >
> >My name is Tara and I am suffering from this problem since I am 20 years
> >old. My original surgery was for a very large ovarian cyst and 8 years
> >and 7 surgeries later, I no longer have a gall bladder, an appendix, my
> >left fallopian tube, my left ovary, and a few sections of my small
> >intestine. I have not gone one year in the 8 without at least a month
> >in the hospital and hyperal and lipids and portacaths and central lines
> >and nasogastric tubes and lots of pain medication, etc. etc. You know
> >the deal. I completely relate to everything you have all said on this
> >forum and it is great to know that I am not alone. I, too, have felt
> >like I wish it would just stop and I could just lay down to sleep and
> >not wake up. I have days where I have only twinges of pain (twinges in
> >my eyes, probably excruciating to the average person) and other days
> >where I get pains that could make me suicidal or even homicidal. I am
> >afraid 90% of the time that the next day will be spent in a hospital and
> >I never plan too far in advance for anything. I am lonely because I
> >feel as if nobody understands me or what I have been through. I have
> >experienced emotions from people ranging from disenchantment to a
> >complete fear that I have the "cooties" or something because I am ill
> >all of the time. My doctors look sad and frustrated everytime they see
> >me again in the hospital. I rarely see them in their offices because I
> >am somewhat well when I am not hospitalized. My finances have suffered
> >greatly and I feel as if I will never marry and find someone who is
> >willing to stick with someone who spends as much time sick as she does
> >healthy and cannot say that she will be well ever. I guess it is just
> >nice to know that I am not alone. Who is Dr. Wiseman and why did he
> >start this forum? Thank you all for your comments. I have found them
> >both informative and helpful.
> >
>