Re: I don't know what else to do

From: Terri Lynch (tdlynch@alltel.com)
Mon Aug 21 16:28:46 2000


Hi Stacey, I had my hysterectomy in Feb. of this year and am in that same pain again. Dr. after Dr. tells me nothing they can do. I am 30 and a newlywed have allot of problems due to the pain. I want to be normal. If I can just figure out what normal is. I get so frustrated with the pain management treatments and all the drugs they have me on and still no relief. I recently started back to church and rededicated my life and know that one day I will be delivered from this and I can actually be active and a good wife and step mom to my to step sons. Hang in there because I have this new attitude I am not going to give up till they find something for this awful pain....

Terri -----Original Message----- From: Stacey <sam7398@aol.com> To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net> Date: Friday, August 18, 2000 9:34 PM Subject: I don't know what else to do

>I am 27 years old and have had four gynecological surgeries within the
>past 3 years. The first two were for cysts the size of grapefruits. I
>was bleeding inside and had emergency surgery, both were laparotomies.
>The third one was for another large ovarian cyst, my left ovary and
>fallopian tube was removed. At the time of this surgery endometriosis
>was also found on my intestines, bladder and ureters along with other
>areas. My doctor burned off the endometriosis in the other areas but
>left the spots on my intestines and bladder. After these three
>surgeries I could hardly funtion due to excrutiating pain. I went to
>doctor after doctor because I wanted a hysterectomy. I was tired of
>having major surgery every year. Finally, I found one that agreed that
>I needed it and it was performed. After the surgery he informed me that
>my colon, bladder, right ovary and ureter were all connected with
>adhesions. He said there was still endometriosis in some areas, but he
>could not remove it from vital organs. I still have it on my intestines
>and bladder. After the hysterectomy, which was about 1 1/2 years ago,
>my pain was minimal. I could tolerate it anyway, but it never went
>away. Now, all of the sudden the same pain that I had before the
>hysterectomy has returned and I am in terrible pain 24 hours a day. I
>can barely function on a daily basis. I don't know what to do. I don't
>want anymore surgery. What type of doctor should I go see about this.
>Most gyn's just say there is nothing that can be done. I am so tired of
>hearing this. I am so frustrated and tired of being in pain. Just the
>thought of having this pain for the rest of my life makes me want to
>die. I need to see a doctor, but I want one that will listen to me and
>not just blow me off. If anyone has any information or could help me
>with this please let me know. Thank you
>


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