Bernie and Beverly Doucette wrote:
> Renee,
>
> There are some very capable doctors out there that are having success with
> there procedures and the prevention of adhesions from reforming.
>
> Sherry Perry had surgery done by Dr. Daniell at Vanderbilt University and
> last I heard she was still very happy.
>
> Quite a few people have gone to see Dr. Harry Reich who along with Dr. Jay
> Redan have recently opened the new Adhesion Center in Scranton,
> Pennsylvania. I have not heard of one person that has had surgery done
> there or at the prior site in New York that came away dissatisfied. Bev
> passed her one year anniversary of her surgery and is virtually pain free.
> Oh sure, she might feel an occasional twinge, but in the past she would be
> virtually incapacitated by this point. There are a number of people that
> have been there real recently...Pam, Beth, Helen....and probably
> others...Barb is on her way today and more to follow. No doctor will give
> you a guarantee that things will no recur.....they can't....their butts
> would be in court all the time.
>
> Now we have people going to Germany and having Intergel used and laparscopes
> done by a very capable doctor. This process is being looked at very closely
> as it can end up being even cheaper than having it done in the states with
> insurance coverage. I, for one, have some doubts about the Intergel because
> I know of a woman who is now worse than before.....she developed infection
> immediately following its use. I know that I have a problem with other
> foreign bodies in my abdomen so I question its effectiveness in my
> situation. But, many are able to withstand its use and I can only
> say....more power to them!
>
> I know for a fact that most of the people on this list have been told by
> their doctors that "they have the worst case of adhesions the doctor has
> seen" and that there is "no way that an adhesiolysis can be performed
> laparscopically"......yet every single person that has gone out to Dr. Reich
> and Dr. Redan have been able to have their procedures done laparscopically.
> They are that good! I cannot speak for Dr. Daniells or Dr. Korell....I
> don't have enough support information to be able to say that.
>
> I do agree that you cannot allow just any doctor to perform your surgery.
> Most of them do not have the skills necessary to be lysing adhesions....even
> though they might think that they do. But do not give up hope or feel that
> you will be suffering for the rest of your life....I have been down that
> road....and there is always a light at the end of the tunnel.
>
> Karla
>> ----- Original Message -----
> From: Renee Madron <1renee2@gte.net>
> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
> Sent: Thursday, July 06, 2000 12:18 PM
> Subject: Re: bowel obstructions
>
> > When I found Dr. Howe, in Knoxville, Tennessee, I told him my problems,
> although
> > they were very obvious. I weighed 80 something pounds, no color, and no
> life in
> > me. He stated, that he would look by lap before he would do an open abd.
> My
> > adhesions were so bad, that when trying to insert the instruments, he
> found that
> > there was resistance, in all areas. He opened my abd. and later stated,
> that he
> > was amazed at what he saw and could only imagine how I had lived and dealt
> with
> > the pain and problems. The adhesions had adhered to the lower portion of
> my
> > stomach and was pulling it down and stretching it, my intestines were
> completely
> > engulfed and hidden, not to mention the adhesions were growing down into
> and
> > through the vaginal area. At any rate, he called in other types of doctors
> to
> > assist. His fears were, that my intestines would have to be modified, due
> to
> > blockage and death of tissue, due to the constriction of the adhesions.
> Thank
> > God for me, none of that had to be done. I had tubes going into every
> orfious
> > possible. Not all adhesions could be taken down, I was back in the
> hospital 6
> > months later. I fear the same now, but where can I turn, no one in this
> area is
> > willing to take on this task. I am constantly nauseous, and I have
> noticed that
> > breakfast and lunch is about all I can handle in a days time, if I eat,
> say
> > after 5 or 6 p.m., I become terribly ill. I have seen those doctors that
> check
> > those things, and I feel like I have drank gallons of that nasty chalk
> stuff,
> > but they say the same thing, "I couldn't find anything wrong with
> you"...My
> > adhesions haven't been taken down in 2 1/2 to 3 years, but I have tried
> other
> > types of procedures during that time, I can only imagine what kind of
> shape my
> > internal organs are in. I hope to find someone soon.
> >
> > Robin Hinks wrote:
> >
> > > I am wondering if any one out there has these thoughts about bowel
> > > obstructions too.I never had anything wrong with my bowel before my
> first
> > > bwel surgery May 14th 1999 to create a new bladder for me.Since then my
> > > bowel obstructions started nd in the beginning were only about once
> every
> > > two months.Since then the time between them has gradually shortened so
> that
> > > before the ileostomy I was eating for about five days(only very light
> diet)
> > > and then a gut obstruction would form and back in hospital for fluids
> > > only.Just before the surgery I found that I couldnt go even those five
> days
> > > without it packing up.Now they think that it is the large bowel not
> working
> > > at all because when they did a defeacagram they could see that the large
> > > bowel was not moving.Well I had my ileostomy and now it seems that the
> > > stomach or small bowel is not pushing anything through to the stoma.I am
> > > luckier than some as I have a gastric tube as well and when the pain
> gats
> > > too much then I release the gastric tube and out pours everything that
> has
> > > been sitting in the stomach that was supposed to go down the small
> bowel.I
> > > am waiting on the dctor to come and see if he knows anymore since he did
> the
> > > endoscopy this morning.It just seems to me that if you re prone to bowel
> > > obstructions does your bowel say "hey weare sick of the trauma and
> handling
> > > and are going to go on strike". Can the bowel tire of interference?
> please
> > > let me know what you think.Love always Robyne.
>> > > ----- Original Message -----
> > > From: Sherry Marie <SMGNWV@aol.com>
> > > To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
> > > Sent: Thursday, July 06, 2000 10:49 AM
> > > Subject: RE: Steps to reduce adhesion formation...Anne
> > >
> > > > Anne, Thanks for your response. I asked my surgeon what his opinion
> on
> > > > second look surgery to take down the adhesions and he did not feel it
> > > > beneficial. He told me to call him when I started vomiting. I have
> had
> > > > acute bowel obstructions and the thoughts of that experience again
> > > > upsets me terribly. I have experienced several partial bowel
> > > > obstructions that seem to be getting more frequent. Due to the fact
> > > > that I have had a bowel resection, the odds are stacked against me.
> The
> > > > pulling sensation is non-relenting and I feel fullness under my ribs
> > > > esp. the left one. An urgent care facility doctor told me that since
> I
> > > > had the TAH the adhesions can also grow from the incision back onto
> the
> > > > intestines. Thanks to all, it means so much to be able to share. I
> > > > used to think I was the only one up against these aliens, now I know
> I'm
> > > > not alone. Sherry Marie
> > > >
> http://www.adhesions.org/forums/listcmds.htm
> > > >
> > >
> >
>