There are plenty who visit here who feel bad and just don't have the strenght, but for those who may be feeling up to it, it is up to us to carry that torch for the rest. There is truly strenght in numbers.
Let's pass on any info we can to each other on getting this disease out in the open and to have our voices heard.
Sherry P
> ----- Original Message -----
From: Renee Madron
To: Multiple recipients of list ADHESIONS
Sent: Monday, July 03, 2000 1:08 PM
Subject: Re: Dateline - Feature on Chronic Pelvic Pain
If each of us, on a daily basis, send dateline and other news sources, our story in full text along with site addresses of information, they may in fact take a look into this disease. You know, after a while they may get tired of seeing the information and may, may just open up this tremendous can of worms for the public, only to appease us. There is enough of us in this society to spark the interest of many, if there is a willingness to step forward. I am all for whatever it takes to bring attention to the cause. LNewman@milbank.com wrote:
The reason, as always, does not have anything (in my opinion) to do with surgery; quite the opposite, they believe that if this thing got exposure, people that do not have it will jump on the bandwagon and start to file for disability, workman's comp., and the list goes on. Does anyone remember carpal tunnel (sp?) syndrome? As with anything "new" they always fear that it will turn into this black hole and it is time that we organize and put competent, skilled and knowledgeable people on programs that count to state our true plight, show examples by having someone from every stage of the pain (from mild to severe cases) and hear or have read aloud, patients for whom pain meds are either denied or given but in very low dosage. Put people that "do not look sick" as we just read about that statement, along with people that look like they are going to drop out at any given moment. I had already suggested a visit to Congress (just like Michael J. Fox did), have an affair of some sort, get some endorsements, and lastly, ask to speak at drs.' conventions all over the world. Come on now, there are MORE than enough of us to cover the entire US of A, and all of us here on earth have a purpose, if you haven't found yours yet, you have now. Why can't each and every one of us start a support group in your neighborhood and tie into a group in each state. Heck, if Avon can go worldwide, why can't we?
All I am saying is this, if we don't do it for ourselves, who will?
-----Original Message----- From: mhaya0902@aol.com [SMTP:mhaya0902@aol.com] Sent: Monday, July 03, 2000 12:34 AM To: Multiple recipients of list ADHESIONS Subject: Dateline - Feature on Chronic Pelvic Pain I have just finished watching DATELINE, and one of the featured segments concerned a woman who suffered chronic pelvic pain and the cause seemed to be related to a buried varicose vein in the pelvis. It seems an M.D. in Johns Hopkins is able to block some of the culprit veins, and has brought about pain relief for some women. I was disturbed by the fact that Dr. Arnat(sp?) listed other pelvic pain causative factors including endo., but as usual, no mention of adhesions as a possible problem. I would suggest that perhaps DATELINE needs to hear from some of us. Research is based on monetary return, and I am convinced the amount of money spent on barrier research will be dependent on the perception that there is a huge need. If varicose veins can get some recognition, why is there such hesitancy to feature the adhesion issue? Why is this issue always getting bypassed? Is it because of the link to surgery? I wonder.... Anne H.
http://www.adhesions.org/forums/listcmds.htm
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