----Original Message Follows---- From: Kb1707tiamet@aol.com Reply-To: email@example.com To: Multiple recipients of list ADHESIONS <firstname.lastname@example.org> Subject: Re: What does it take to get adhesion-related disease (ARD) recognized as a d... Date: Wed, 23 Feb 2000 18:23:10 -0600
I wish I knew, Helen, but I think it's HIGH TIME somone was made to see this problem for what it truly is. A very debiolitating & painful disease that strikes at any given moment. ARD does not care if you're walking down the street...or down the stairs...or at work tring to eek out a living as a productive human being. The pain just comes, like a shot in the dark, & brings you to your jknees. HARD!!! I ebginning to realize I have to get agressive w/the people who are "in charge of my health & health care". Doing it will be like pulling teeth, but do it I must! Who wants to work around someone who has gas attacks she can';t run away from fast enough. Who can;t wear just any clothing cuz it hurts to have anything touching your mid-seciton, God, the list just goes on & on.
Maybe we need tobe more forceful about our adhesions, get a petition together & bug them til they can't stand to hear from us anymore.
Frustrated in NY,