Re: Wow! I'm not crazy!!

From: Susan_OR (Susan_OR@iwon.com)
Sun Feb 13 12:59:39 2000


Thanks Kim! This has been very imformative. I had no idea that there was such a high chance of the adhesions and pain coming back after surgery. At least I understand my docs hesitance to do more surgery better now.

Take Care, Susan

At Sat, 12 Feb 2000, KIM MERRELL wrote: >
>At Fri, 11 Feb 2000, Susan_OR wrote
>
>HI SUSAN!
>
>WELCOME TO THE FORUM! IM SORRY TO HEAR ABOUT YOUR SITUATION.
>I THINK AT ONE TIME ALL OF US THOUGHT THAT WE WERE CRAZY OR GOING CRAZY.
>
>JUST TO LET YOU KNOW..THAT I BELIEVE THIS IS MOST INFORMATIVE WEBSITE
>THERE IS THAT I HAVE FOUND. IT CUTS THROUGH ALL THE BULL AND TELLS IT
>LIKE IT IS.
>
>I FEEL LIKE YOUR DOCTOR SHOULD BE MORE EXPLANATORY IN THEIR
>TALK ABOUT THE FACT THAT YOU "COULD" HAVE ADHESIONS.
>PLEASE...PLEASE..FIND OUT MORE ABOUT ADHESIONS BEFORE YOU EVEN THINK OF
>HAVING ANOTHER SURGERY. IM SURE YOU HAVE READ ALL OF OUR STORIES. I
>TOO..WAS TOLD..IT COULD BE ADHESIONS..OR ITS PROBABLY ADHESIONS
>AGAIN..IN THE MOST
>NONCHALANT WAY..THAT I JUST WENT WITH THE FLOW & DID THE SURGERIES AGAIN
>& AGAIN TO NO AVAIL. NOW IM WORSE OFF THAN I EVER WAS. (PAINWISE THAT
>IS)
>
>SOMETIMES A SECOND OPINION IS NEEDED. YOU MUST PUSH YOUR DOCTOR TO
>EXPLORE ALL OF YOUR AVENUES. ITS YOUR BODY..AND ONLY YOU KNOW WHAT ITS
>FEELING. I HOPE THIS FORUM HAS HELPED YOU LIKE IT HAS HELPED ME. I
>WILL DO ANYTHING TO HELP GET THE WORD OUT ABOUT OUR "STICKY" SITUATION.
>
>GOOD LUCK SUSAN! KEEP IN TOUCH.
>
>KIM M
>
>>I am so thankful to have stumbled upon this site today. I'm not the
>>only one to have this pain after surgery! I've had 3 abdominal surgeries
>>in the past year. The last surgery was a total abdominal hysterectomy
>>caused by invasive cervical adenocarcinoma. After my first surgery I
>>started having some unexplained pain that has just gotten worse with
>>each surgery. It's at an all time high right now. The CT scan didn't
>>show anything and my doctor doesn't know what is causing my pain now.
>>She mentioned briefly that "it could be adhesions" but said that she
>>didn't want to do surgery because that would cause more. So what am I
>>supposed to do? I'm 28 years old. Living the rest of my life in this
>>much pain just isn't an option. I'm taking the max dose of naproxen and
>>tylenol everyday with no relief. My doctor just wants to "wait and see"
>>what happens. Easy for her to say!! She won't even give me anything for
>>the pain. I also have Fibromyalgia and IBS...which is making it that
>>much harder to diagnose the pain.


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