Re: toni adhesions and pain

From: Janet (rpaddles@aol.com)
Thu Feb 3 08:56:57 2000


At Thu, 3 Feb 2000, toni welsh wrote: >
>>>>to do it laparascopically or did they have to cut? Ginni
>>
>What you just said, Janet is the same thing they had trouble with me,
>they could not see anything, and could not ggo through the adhesions,
>they are so thick. So a month later I had to go in for a laparotomy.
>Two times being put to sleep, so I feel like the drs all have told me
>this, so why put yourself through an extra surgery.
>
>I have been feeling so bad, as far as the painI had for 4 days, seems
>better today. For two days I could not touch the right side , and if I
>happened to lean on that side when I was trying to cook or do some
>dishes, by the sink, I went through the ceiling. These episodes are
>getting worse, I am bragging and as I write this, now I am having bad
>stabbing pains in my left side , bot I 'll tell you this is so
>aggravating, and seems I STILL run into some drs who do not believe
>adhesions cause pain, and the last time I saw my GI dr, I told him well,
>then someone better find out why I am in pain.
>
>I ahve benn so afraid to call my gyn about his, he has found a surgeon
>who would assist the gyn, general surgeon, knowing I want my gyn in the
>OR too. To tell you the truth now I am SO SCARED to have anymore
>surgery, you read about the two girls who have died over ARD, the last
>one I read she insisted on surgery, and she died, I am VERY scared, but
>it hard to live like this sometimes. I am so confused now. Why have
>things acted up again, and it feels like gas gets trapped on the side ,
>and will not come out, and then to pain gets worse. I still think that
>some of these episodes are partial blocked. They just hurt to bad, and
>I take meds that SHOULD help, and I told my husband the other night, I
>was in ALOT of pain for those days.
>
>I do not understand why the meds DO NOT help those pains whn
>when I get like that! I am not taking Ativan too much, janet, I know
>what you mean I was on Xanax for years for painic attacks, I hated
>getting off of those, so I put the Ativan up in the cupboard I am not
>taking them, and thank you for caring. I hope you all are feeing okay!
>
>Love to all,
>Toni

Dear Toni, I remember writing to you a couple of months ago and we realised we were in the same situation.

I'm so sorry - you seem to be at the end of your rope with this continuous pain.ARe you working at the moment? Ive been off work now since last August because I found I just couldnt function anymore. The pain on my left side comes and goes, cos I suppose Im resting alot.But when its there - i tell you I could putt my hair out. I am really dithering about further surgery.But like you I have trouble with just carrying on.My life is on hold.Is that how you feel?

You dont have to go through this alone.You can always email me direct at rpaddles@aol.com and we can talk some more. Please forgive my bad memory - but have you had a hyst as well? Only I have joined hystersisters which is a really supportive group for women who have had hysts.

Hope to hear from you love Janet


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