Re: Coping without surgery

From: Helen Dynda (
Thu Jan 27 19:00:56 2000

Oh Great!! I forgot to include the website! Here it is:

*International Pelvic Pain Society


At Thu, 27 Jan 2000, Helen Dynda wrote: >
>Richard, It is good to have you back at the Message Board! I don't claim
>to have all of the answers; but if you want to "lighten your load", you
>are at the right place. "A problem shared is a problem halved."
>Has your wife tried acupuncture or hypnosis? Some doctors at the Women's
>Health Forum say that these alternative methods of pain relief can help
>to bring down a person's pain level.
>The International Pelvic Pain Society has some very helpful information.
>Click on each of the following for more information:
>1.) Resources - There is alot of information
>2.) Physician Members - Are any of these physicians located near where
>you live?
>If you want to share information privately, feel free to do so.
>At Thu, 27 Jan 2000, Richard Hagen wrote:
>>I know I haven't written much. My wife needs a new pain
>>doctor for pain meds and to keep her motivated in fighting
>>the ARD. We are still waiting to hear if surgery is
>>available. Meanwhile she suffers greatly.
>>We were unable to connect with Dr.Reich when we were in New
>>York plus she most likely needs a full surgery and not a lap
>>with a scope. The clinic in New Orleans never got back to
>>me. We have been made into pariahs locally and it is very
>>hard to keep a PCP. I don't know what to do anymore. It's
>>like we are at an impasse and nothing will happen unless it
>>is life and death and then it most likely will be just
>>another two years of suffering and more doctors. Dr.
>>Semertzides has not responded as of late. He was the last
>>surgeon to work on her. He was going to arrange surgery
>>where he could use the interceed. But no info.
>>We tried the nerve blocks, pain clinics, pain doctors,
>>physical therapy ,now its viceral manipulation. I still feel
>>that we are just wasting our money on unknowledgeable
>>Its hopeless.

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